Image
Image



Scleroderma Talks

Overview, Research , Specific Manifestations, Self Management
Please click the appropriate link below to be forwarded to a specific video. List is by category then by most recent.
Green text indicates talks were recorded at Scleroderma Foundation National Conferences (2011, 2010)

Title Speaker Event Date
Overviews      
Scleroderma Diagnosis and Treatment and How it Differs in People of African American Descent V. Steen, MD African American Health Awareness Day, Rochester, NY Oct. 2014
Scleroderma Symptom Management J. Pope, MD Patient Educational Forum, Niagara Falls, NY Aug 2014
Scleroderma is a Vascular Disease, Inside and Out L. Shapiro, MD Patient Educational Forum, Niagara Falls, NY Aug. 2014
Advice on Living Well with Scleroderma H. Blumstein, MD Long Island Ed Forum - Stony Brook May 2014
What is Scleroderma & What Makes Juvenile Form Different. S. Taber, MD Spring Ed Forum, New York, NY April 2014
Earlier Recognition of Scleroderma-Spectrum Connective Tissue Disease V Hsu, MD Joint Chapter Forum, New Brunswick NJ Nov 2013
Scleroderma and Cancer: Are They Connected F. Boin, MD Annual Research Forum HSS, New York, NY Nov 2012
Scleroderma: Therapies that Make A Difference V. Hsu, MD Joint Chapter Forum, New Brunswick NJ Oct 2012
What Makes Scleroderma Different From Other Autoimmune Diseases E. Rosenstein, MD Joint Chapter Forum, New Brunswick NJ Oct. 2012
Vascular Disease in Scleroderma L. Shapiro, MD Albany Educational Forum Sept 2012
Diagnostic Testing in Scleroderma J. Gordon. MD. Spring Ed. Forum, HSS, NY NY Apr 2012
Scleroderma: Is it One Disease? A. Goldberg, MD Long Island Ed Forum March 2012
Overview of Symptoms and Treatment of Scleroderma M. Abdulky, MD Syracuse Ed Forum Nov 2011
Scleroderma and Medications Jessica Farrell, PharmD Albany Educational Forum Sept 2011
Keynote (Close) Coping with Scleroderma James Lemons, Ed.D SF National Patient Education Conference July 2011
Scleroderma Overview & Commentary Santhanam Lakshminarayanan, M.D. Ct. Ed. Forum, UCONN Medical Ctr May 2011
What's New in Scleroderma Laura K. Hummers, MD Spring Ed. Forum, HSS - NY NY April 2011
Autoimmune Disease Patient Education Panel (Part 1) R. Lahita,MD, R. Baron Faust,MPH, M. Picone, MD Auto Immune Patient Education Panel Discussion, Hackensack Univestiy Hospital April 2011
Autoimmune Disease Patient Education Panel (Part 2) L. Wunderman, J. Gordon, MD
" "
 
       
Research      
Phototherapy and UVA-1 Phototherapy Research H. Jacobe, MD Annual Research Forum, New York, NY Nov 2014
Update on Scleroderma Research: Searching for Cause and Cure M. Mayes, MD Annual Research Forum, New York, NY Nov 2014
Update on Scleroderma Research Erica L. Herzog, MD Yale Patient Educational Forum June 2014
Adenosine in Skin Fibrosis Edwin Chan, MD Tri-State Fall Research Forum Nov 2011
Scleroderma: Heredity and Environment T. Medsger, MD Fall Research Forum, NYC Nov 2011
Participating in a Scleroderma Research Trial J. Gordon, MD Annual Research Forum Nov 2010
Advances in Understanding the Pathogenesis of Scleroderma R. Lafyatis, MD Annual Research Forum Nov. 2010
Research Update James R. Seibold, MD CT Ed Forum, UConn Medical Center Sept 2010
Is Scleroderma Genetic or Environmental Carol Feghali-Bostwick, MD Joint Chapter Forum, New Brunswick, NJ Oct 2007
       
Specific Manifestations      
Autoimmune Disease and the Dry Eye James Aquavella, MD Rochester Ed. Forum, University of Rochester Sept 2010
Dental Care Issues in Scleroderma Theodore Gialanella, DDS Albany Ed Forum Sept 2013
Dental Issues Related to Scleroderma Valentina Lyssova, DDS Spring Ed. Forum, HSS, NYC April 2013
Dental Issues Related to Scleroderma David Leader, DMD Ct. Ed. Forum, UCONN Medical Ctr April 2012
Digestive System Issues in Scleroderma Dinesh Khanna, MD Niagara Falls Ed. Forum Oct. 2012
GI Manifestations in Scleroderma T. Ben-Menachem, MD Joint Chapter Forum Oct. 2011
GI Involvement in Scleroderma Lawrence Saubermann, MD Rochester Ed. Forum, University of Rochester Sept 2011
Why Won't My Food Digest (GI) Philip Jaffe, MD Albany Ed. Forum Sept 2013
Hand Surgical Options for Patients with Scleroderma Charles Melone, Jr. MD NYC Ed. Forum, New York, NY April 2012
Fundamentals of Hand Care for Scleroderma Celeste Freeman, OTR/l CHT Albany Ed. Forum Sept 2011
Maintaining Hand Function Marianne Moran, OTR Joint Chapter Forum, New Brunswick, NJ Oct 2009
Scleroderma and the Lung Paul Strachan, MD Long Island Ed. Forum May 2014
Research & Hope for Interstitial Lung Disease in Scleroderma Erica L. Herzog, MD Fall Research Forum, NYC 2013 Nov 2013
Lung Disease & Scleroderma Robin Lucas, MD Joint Chapter Forum Nov 2013
Update on Scleroderma Related Interstitial Lung Disease Mridu Gulati, MD, MPH Yale University Ed Forum June 2013
New Insights- Scleroderma Lung Disease (ILD) Erica L. Herzog, ND CT Ed Forum, UConn Medical Center Sept 2010
Scleroderma and Getting the Proper Nutrition Joy Valvano, MS, RDE Rochester Educational Forum Sept 2013
Basic Nutrition & Scleroderma Danielle Stegman, RD Syracuse Ed Forum Nov 2011
Oral Health & Scleroderma David Leader DMD NYC Ed Forum, NY,NY. April 2009
Chronic Pain Management Jennifer M. Kapo, MD Ct. Ed Forum June 2014
PH and Scleroderma Maria Padilla, MD Spring Ed Forum, HSS, NYC April 2013
Pulmonary Hypertension in Scleroderma Christopher Dibble, MD Albany Ed Forum Sept 2012
Pulmonary Aretery Hypertension & Interstitial Lung Disease in Scleroderma A. Talwar, MD Long Island Ed Forum Mar 2012
Update of the Management of Lung Disease in Scleroderma: A Focus on Pulmonary Hypertension Sean Studer, MD Joint Chapter Forum, New Brunswick NJ Oct 2010
Pulmonary Arterial Hypertension James White III, MD Rochester Ed Forum, Rochester, NY Nov 2008
Pulmonary Hypertension in Scleroderma Wassim Fares, MD Yale University Ed. Forum June 2013
Raynaud's Phenomenon & Scleroderma Harjinder Chowdhary, MD CT Ed Forum, UCONN Oct, 2013
Shortness of Breath - 3 Things You Need to Know Robert Dale, MD Rochester Ed Forum 2013 Sept. 2013
Sjogren's Disease & Scleroderma Harjinder Chowdhary, MD Ct. Ed. Forum, UCONN Medical Ctr April 2012
Scleroderma and Your Skin Frank Santoro, MD Ct. Ed Forum, UConn Medical Ctr Oct 2013
Skin Problems in Scleroderma Heidi Jacobe, MD SF National Patient Education Conference July 2011
Sexuality & Scleroderma Jessica Gordon, MD LI Ed Forum, Huntington NY April 2010
What's New in Stem Cell Therapy in Scleroderma Robert Simms, MD Fall Research Forum, NYC Nov 2013
       
Self Management      
Improving Flexibility in Scleroderma Celeste Freeman, OTR Albany Ed Forum Sept 2014
The Mind/Body/Spirit Connection. Mark Pettus, MD Spring Ed Forum, New York, NY April 2014
Support, Advocacy and Self Empowerment Seth Ginsberg Spring Ed. Forum, New York, NY April 2014
Scleroderma Patient centered Intervention Network (SPIN) Lisa Jewett, MSC Niagara Falls Ed. Forum Oct 2012
Understanding Pain - Why We Feel it Amy Parkhill, PhD Rochester Ed. Forum 2012 Sept. 2012
Nutritional Strategies in Scleroderma Rose Payne, CHHC Joint Chapter Forum, Somerville NJ Oct. 2011
Be Your  own Best Advocate (revised) Jan Gnall, MA Long Island Ed Forum, Huntington NY Oct 2010
Self Management Strategies Deborak McCloskey, RN CT Ed Forum, UConn Medical Center Sept 2010
NeedyMeds Richard J. Sagall, MD Scleroderma Spring Forum April 2010
       
Caring For the Caregiver      
Rising Above Grief & Anger Rev. Ernie Steffensen Caring for the Caregiver, Binghamton,NY August 2013
Navigating the Health Care System & Goals of Care Maria Motsavage, RN, BSN Caring for the Caregiver, Binghamton NY August 2013
Mastering the Impact of Chronic Pain and Fatigue E, Hull, FNP Caring for the Caregiver, Binghamton NY August 2013
Embracing the Emotions of Caregiving Jerry Duvinsky, PhD Caring for the Caregiver, Binghamton NY August 2013
Finding Humor and Fun Dorothy Gardner, BS Caring for the Caregiver, Binghamton NY August 2013
       
Other      
Laughter is Good for the Sole Richard A. Ray II African American Health Awareness Day, Rochester, NY Oct 2014
Making Each Moment Count Sr. Anne Bryan Smollin, CSJ, PhD Albany Ed. Forum (Tri-State) Sept. 2012

(Green text indicates the talks were part of the Scleroderma Foundation's National Patient Education Conferences,( San Francisco July 2011, Boston July 2010)
Disclaimer:Neither the Scleroderma Foundation (including its member chapters), nor Starlight Productions, nor the featured speakers, make any recommendation or endorsement of any specific treatment, medication or product for any individual.  Patients are advised to consult with their own healthcare professionals regarding their own treatments.




Recording your event....click here for more information
 

 

 

 

Hit Counter

 

Image
Image
image