"How Scleroderma Patients Managed Their Illness:
A Study Report"
Shohreh Anand, EdD
"Patient Education Forum"
September 15, 2018
The information presented on this site is intended for educational purposes only. Neither the featured speakers, nor the Scleroderma Foundation, nor Starlight Productions ( the producers of these videos) suggest, recommend or endorse any specific treatment for any individual. Patients are advised consult their own health
care providers for treatment options.
About Ms. Anand:
Shohreh is passionate about patient empowerment so that patients actively engage in their own care and harness their
own and peer patients’ experiential knowledge. She believes that when patients are engaged, either individually or
collectively in groups, it results in better clinical outcomes. She has validated this through her own personal experiences
and the experiences of other patients and care givers.
Shohreh has a doctorate from Teachers College, Columbia University. Her dissertation research was about Scleroderma
patients’ commitment to illness management and explored the learning in patients with this chronic condition and the role of support groups
in management of their illness using surveys and interviews of patients in NY, NJ, CT Tri-State area. Her interests are at the intersection of patient
empowerment and technology. Shohreh has degrees in Computer Science and has contributed breakthrough research in medical imaging for
Philips Medical Systems resulting in a patent in digital mammography. She is an educator who promotes technology literacy by teaching college computer science courses