"Interprofessional Education: Focus on Scleroderma"
Steffens Scleroderma Foundation

Recorded at Sage Colleges - Health Sciences
Troy NY
March 20 2018


The information presented on this site is intended for educational purposes only. Neither the featured speakers, nor the Steffens Scleroderma Foundation, nor Starlight Productions ( the producers of this video) suggest, recommend or endorse any specific treatment for any individual. Patients are advised consult their own health care providers for treatment options.

About This Event:


Educating tomorrow’s health care providers on Scleroderma:

The Steffens Scleroderma Foundation mission statement includes promoting awareness and understanding of Scleroderma, Degos Disease and related disorders to health care providers.

In keeping with this mission, Steffens hosted an educational event for students in various health care disciplines on March 20, 2018 at Sage Colleges in Troy NY, introducing these future healthcare professionals to scleroderma. (these disciplines included were Nursing, Nutrition, Occupational Therapy, Pharmacology and Psychology

Prior to this event, the students viewed videos provided by Steffens. Additionally, six students were interviewed before the event on their knowledge of scleroderma (and the same six were interviewed after the event to determine what they learned and how their perceptions may have changed.(the video above reflects excerpts from the student interviews...a video for the full interviews is below:)

In brief, the students were introduced to scleroderma through a Keynote address by Scleroderma Patient and Advocate Amy Gietzen who spoke of the disease from a patient’s perspective, including the frustrations of dealing with health care providers.

After some direction from a panel of instructors who are practitioners in these disciplines, students from each discipline worked together to develop appropriate and effective interview questions to use on a patient to establish a rapport, and to determine their needs. After further discussion from the panel, each table was joined by a scleroderma patient for a group interview and discussion.

The evening concluded by several students interviewing Ms. Gietzen in front of the audience and panel - who critiqued and offered their own input.

Steffens Scleroderma Foundation
Sage Colleges - Health Sciences
Full Interview Video