Self Management

The information presented on this site is intended for educational purposes only. Neither the featured speakers, nor the Scleroderma Foundation, nor Starlight Productions (the producers of these videos) suggest, recommend or endorse any specific treatment for any individual. Patients are advised consult their own health care providers for treatment options.

“Coping with Chronic Illness"
Speaker: Christine Jean-Jacques, PhD
Rochester Ed. Forum
October 2016
“Living with Scleroderma: Dealing with the Impact of Illness on Your Personal Life"
Speaker: Lenore M. Buckley, MD
Yale Ed. Forum
Orange CT, Sept 2016
“Living Well with Chronic Pain”
Speaker: Casey Cashman
Joint Chapter Forum
New Brunswick NJ, October 2015
“Coping with Chronic Illness”
Speaker: Tziphorah Rosenberg, PhD
African American Health Awareness Day
Rochester NY, October 2014
“The Mind/Body/Spirit Connection”
Speaker: Mark Pettus, MD
Patient Education Forum
NYC April 2014


" Support, Advocacy & Self Empowerment" Speaker: Seth Ginsberg
Patient Education Forum
NYC April 2014


"The Scleroderma Patient-centered Intervention Network: Internet-based Management of Body Image Distress "
Speaker:Lisa Jewett, MSc
Patient Education Forum
Niagara Falls, Oct. 2012

"Self Management Strategies and Scleroderma" Speaker:Deborah McCloskey, RN
Patient Education Forum
Farmington CT Sep. 2011