Sclerodermavideo.org is a cooperative venture between Starlight Video Productions and the Scleroderma Foundation/ Tri-State Chapter.
It is the goal of this site to further education not only for patients, but for their loved ones, caregivers, and for health care professionals who may be treating scleroderma patients.
Founded in 1991, Starlight Productions began as an event videography company in the Hudson Valley region of NY. We became acquainted with Scleroderma in 1994 when a client who was a patient (and a chapter president) approached us about recording some scleroderma-based workshops. Over the next few years this led to affiliation with the Scleroderma Foundation on both the national and local levels, and we have been involved for 21 years as of this writing.
We've found that working for the scleroderma community has been some of the most fulfilling work we've had the opportunity to perform.
Scleroderma Foundation / Tri-State Chapter
The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is three fold: To provide educational and emotional support to people with scleroderma and their families; to stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and; to enhance the public’s awareness of this disease.
The chapter hosts two major educational forums per year (spring and fall), currently at the Hospital For Special Surgery located in New York City. The spring forum generally includes topics dealing with specific aspects of scleroderma, with the Fall forum being research oriented, as it normally follows the annual meetings of the American College of Rheumatology.
Additionally, forums have been held in other locations including Albany, Rochester, Yale University, and Norwich Ct. A Joint Chapter forum, cohosted by the Delaware Valley chapter, has taken place in each of the last 8 years in New Brunswick, NJ. The Delaware Valley Chapter supports southern New Jersey, eastern Pennsylvania and Delaware.
There have also been forums in Niagara Falls, NY co-sponsored by the Scleroderma Society of Ontario